Center for Virology and Vaccine Research (CVVR) Volunteer Registry
Dr. Kathryn Stephenson, Beth Israel Deaconess Medical Center (BIDMC)
We use this registry to match interested volunteers with approved research studies that are looking for participants.
How we will protect your information:
Information will be kept electronically on a highly secured server at BIDMC.
Only authorized study staff members will be able to access your information.
If there is a study you might want to participate in, your contact information will be shared with that research team in a safe and secure manner so that they can reach out to you and ask you if you'd like to participate.
Information we collect: Your participation in the registry is entirely voluntary and you may withdraw at any time.
- Name The information you provide for the registry will be kept indefinitely.
- Contact information
- Preferred method of contact If you decide you are no longer interested in being contacted for future studies, you may
- How you heard about the registry withdraw your participation at any time by either of the following means:
- Sex -Call the registry at 617-735-4610
- Gender identity -E-mail the registry at mailto:firstname.lastname@example.org
- Weight If you choose to withdraw your participation, all of your information will be removed
- HIV status from the registry and this will have no effect on your status as a BIDMC patient, employee,
- Allergies or volunteer.
- Medical conditions
- Medications used
Risks and Benefits
There is no direct benefit to you from being in this registry.
Potential risks include social harms if a friend or family member perceives your involvement with the registry of virology and vaccine research as negative.
We cannot make a guarantee against potential breaches of electronic information.
After Joining the Registry
The registry will help us contact you about a study for which we think you may choose to participate.
It is possible that there may not be a research study that you will be eligible for, or there not be a study that you are interested in participating in.
The registry might be reviewed by auditors to make sure that it meets federal and state patient safety and privacy regulations. This is to protect people who participate in research studies. Reviewers may include members of the BIDMC Institutional Review Board or regulators from the federal Food and Drug Administrators (FDA).